29th Feb ’16 is Rare Disease Day: what can you do to spread awareness of Sweet’s syndrome?

The 29th February 2016 is Rare Disease Day. What can you do to spread awareness of Sweet’s syndrome?

  1. Like our Facebook page.
  2. Join our HealthUnlocked forum. It’s free!
  3. Follow this blog.
  4. Follow me on twitter @sweetsfiend.
  5. Follow on Google +.
  6. Talk about Sweet’s syndrome: share some posts; comment; blog about your experiences; tag a friend; tweet for Sweet’s.
  7. Make a donation to the Autoinflammatory Alliance. This is a US-based non-profit organization that helps children and adults with autoinflammatory conditions, including Sweet’s syndrome.
  8. Make a donation to Skin Conditions Campaign Scotland. Sweet’s Syndrome UK is a patient organization member of this charity. This gives us a greater ability to spread awareness of Sweet’s syndrome throughout the UK via Scotland.
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2 thoughts on “29th Feb ’16 is Rare Disease Day: what can you do to spread awareness of Sweet’s syndrome?

  1. I have severe Sweet’s Syndrome. The steroid treatment caused
    me to have a heart attack. I am being treated with infiximab,
    but it is not helping the Sweet’s Syndrome.

    Like

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