Welcome to the Sweet’s Syndrome UK blog!
About Sweet’s Syndrome UK.
Sweet’s Syndrome UK is a Cardiff-based group that I, Michelle Holder, founded in June 2012 to help those with the rare autoinflammatory condition and neutrophilic dermatosis, Sweet’s syndrome. The main aims of the group are to provide evidence-based patient information and improve access to information, and provide advice and support to those both inside and outside of the UK.
Supporting charities and organizations and where you can find Sweet’s Syndrome UK listed.
- Autoinflammatory Alliance.
- British Association of Dermatologists.
- DermNet NZ.
- Genetic and Rare Diseases Information Center (GARD).
- National Organization for Rare Disorders (NORD).
- New Zealand Organization for Rare Disorders (NZORD).
- Rare Disease UK.
- Skin Care Cymru.
What is Sweet’s syndrome?
Sweet’s syndrome (SS) is a rare autoinflammatory condition and form of neutrophilic dermatosis that mainly affects adults, but can also affect babies and children. The main symptoms include fever and painful skin lesions that most often appear on the face, neck and upper extremities, but can appear on any part of the body. On rare occasions, there are no skin lesions. Other symptoms include fatigue which may be debilitating; muscle pain; joint pain or joint pain and swelling (arthritis); headaches or migraine; sore eyes or other eye problems; mouth ulcers. On rare occasions, the lesions can develop in internal joints and organs causing more serious symptoms. Very rarely, SS may be life-threatening. The cause of SS is poorly understood, but it is associated with infection; cancer, mainly blood cancer; autoimmune conditions; inflammatory bowel disease; medications; pregnancy; skin damage; immunodeficiency; overexposure to sunlight or ultraviolet light; vaccination. In regards to the latter, SS triggered by vaccination is very rare – only 11 documented cases in the past 44 years, globally.
- The information posted on this blog is not a replacement for proper medical advice and treatment. Sweet’s syndrome must be diagnosed and treated by a doctor.
- Sweet’s Syndrome UK does not promote the use of alternative therapies. This is because there is no evidence to show that alternative therapies are either safe or effective in the treatment of Sweet’s syndrome. Please do not use this blog to try to promote or sell alternative therapies.
- Most of the information on this blog has been collated and written by me – Michelle Holder, Sweet’s Syndrome UK. Other individuals or groups are not permitted to present this information as their own.
- Offensive comments will not be tolerated. This may result in an immediate ban.
- Sweet’s Syndrome UK does not request or accept donations, and has never done so.
- Sweet’s Syndrome UK does not sell Sweet’s syndrome or rare disease services or merchandise, and has never done so. The sale of any Sweet’s syndrome or rare disease services or merchandise is not associated with Sweet’s Syndrome UK in any way.
- Please do not make comments asking for money or donations, or try to sell or promote the sale of services or merchandise via this blog.
- Sweet’s Syndrome UK does not work in association with any other Sweet’s syndrome organization, site, group, or social media site or group inside or outside of the UK. Sweet’s Syndrome UK is not associated with any of their activities, and cannot be held responsible for their activities or the information they provide.
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